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Real members of myT1Dteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I am a writer but am not finding information to help the parents with logistics of this frightening new world.

February 18, 2024
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A myT1Dteam Member

Contact your local JDRF! They have literature for both kids and parents as well as mentors and meetings/meet-ups.

February 23, 2024
A myT1Dteam Member

Thank you. I have contacted them, sent a donation and hope to become involved and even create literature. I have worked in special ed advocacy training and with the disAbility Law Center in my previous state. This is going to be quite a journey. I and my daughter are thankful for people like you who reach out!

February 27, 2024
A myT1Dteam Member

I also like yo say that you as parents and grandparents can effect your T1D so like this post says be calm, supportive, and be therefore them and encourage them with you and your T1D work together and support one another you can make this transition a happy existence.

February 19, 2024
A myT1Dteam Member

I am so sorry to hear. Yes it can be frightening, especially for parents and grandparents! Best thing I can tell you is be strong and remain calm around your granddaughter. My mother fell apart when I was diagnosed, and that affected me for a long, long time. I blamed myself for causing my family pain and hardship.
The good news is that T1D is a condition one can live with. The medical miracles are happening every day. Stay positive, listen to the Doctors and don’t hesitate to ask questions! Sending a big hug for your granddaughter and your familt❣️

February 19, 2024

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New York, NY