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Real members of myT1Dteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myT1Dteam Member asked a question 💭
North Quincy, MA

I was diagnosed in 1985 as type 1 and put on pills that eventually stopped working and then in 1991 I had diabetes ketoacidosis and was in the ER and hospitalized and given insulin and yet still thought it was type 2 then when I moved to another city, I asked my new endo if it was type 1 or 2 and she said it was type 1

March 2, 2025
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A myT1Dteam Member

Type 1, or insulin dependent diabetes, was known for many years as Juvenile Diabetes. Scientists believed that children primarily got it.

Meanwhile, Type 2, or Adult-Onset Diabetes, was thought to be primarily an Adult disease.

Recently, it has been shown that adults get Type 1, and even more recently, that children get Type 2.

Unfortunately, the medical community generally goes by the old guidelines, using age at diagnosis for diagnosing their patients. Little by little, this is starting to change.

There are two tests that can be done to determine which type of diabetes a person has. As more doctors become aware of these tests, the more accurate diagnosis will be.

March 2, 2025
A myT1Dteam Member

Because doctors can give pills for type 2 and tell you to lose weight. Doctors like to give scripts for pills.

March 27, 2025
myT1Dteam

Adult-onset type 1 diabetes is actually more common than childhood-onset, but this fact isn't widely recognized. Studies show that about 38% of people over 30 with diabetes symptoms were incorrectly treated for type 2 diabetes when they actually had type 1 diabetes.

The key reason for misdiagnosis is that type 1 diabetes Show Full Answer

Adult-onset type 1 diabetes is actually more common than childhood-onset, but this fact isn't widely recognized. Studies show that about 38% of people over 30 with diabetes symptoms were incorrectly treated for type 2 diabetes when they actually had type 1 diabetes.

The key reason for misdiagnosis is that type 1 diabetes presents differently in adults compared to children. Adults tend to produce more insulin initially, which can result in more moderate blood sugar levels compared to the dramatic spikes seen in children. Your experience with DKA is unfortunately common among misdiagnosed patients. Having the correct diagnosis is crucial because it leads to proper treatment. As one myT1Dteam member shared, after finally getting the correct type 1 diagnosis and appropriate treatment including insulin and continuous glucose monitoring, their A1c improved dramatically from 11.3 to 5.8 in just three months.

If you suspect a misdiagnosis, antibody testing can help confirm whether you have type 1 diabetes. Remember that type 1 diabetes cannot be managed with pills alone as it's an autoimmune condition requiring insulin therapy.

March 2, 2025

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