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What Advice Are You Grateful To Share With Others About Type 1 Diabetes?

myT1Dteam asked a question 💭
San Francisco, CA
December 24, 2024
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Answer Summary

Members shared deeply personal advice on living with type 1 diabetes in response to the question about what wisdom they're grateful to pass... Read more

Members shared deeply personal advice on living with type 1 diabetes in response to the question about what wisdom they're grateful to pass along, with recurring themes of taking it one day at a time, celebrating small victories, and not dwelling on inevitable bad days or numbers. Several members emphasized life-changing technologies like insulin pumps and continuous glucose monitors, sharing how devices like the Tandem, Omnipod, and Medtronic 780G have dramatically improved their A1C levels, prevented dangerous lows during sleep, and made daily management far less burdensome. A powerful thread throughout was the inspiration of longtime survivors thriving after 46, 54, 60, and even 61 years with type 1 diabetes and no complications, offering hope that with diligence, the right medical team, modern tools, and a positive mindset, a long and healthy life is absolutely possible.

A myT1Dteam Member

Never forget that diabetic ketoacidosis (DKA) is not caused by hyperglycemia. It is caused by the lack of enough insulin in the bloodstream. If you choose to avoid eating for some reason and think that means you shouldn't take insulin, you are putting yourself at risk. People can, and DO develop DKA when the blood glucose is in a normal range. Don't think what you are feeling can't be DKA. It may very well be. Use a ketostick to check yourself and get help if necessary.

December 24, 2024
A myT1Dteam Member

The only thing that truly touched my soul on this journey so far is “take this disease one day at a time”. You’re not always eat “good” or have good numbers but you can always start new the next day. It really helped me care for my daughter without worrying about what’s going to happen next week

December 24, 2024
A myT1Dteam Member

I'm grateful for my Tandem insulin pump! It has kept me alive. Much better control with my diabetes. It tells you when you are going to have a high blood sugar and a low blood sugar. I pray that everyone has a healthy NEW YEAR!

January 1, 2025
A myT1Dteam Member

In 1964 when I became a diabetic, my mother purchased all of the books by the Joslin clinic, which were the last word in T1D at the time. I read in one that I might live until the age of 30 or so, which sounded great at the time. However, every decade or so those words come back to me and I’m so grateful to be 69 with relatively few complications.

I didn’t take good care of myself for many years because slow acting insulin and urine tests didn’t serve as much of a guide for good control.

I started on an insulin pump in 2000, and immediately was able to get my A1C under. I’m extremely grateful for the current line of insulin pumps and CGM.

December 31, 2024
A myT1Dteam Member

I've been a type 1 for 46 years. It's just a way of life for me. I never dwell on the negative. In fact I don't think I'm any different than anyone else. I just do things differently. I'm 70 and right now I'm at my healthiest. Just had blood work done and my numbers are all in the normal range. My A1C is 5.0. 👍

December 25, 2024

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